Keynote Speaker:  Ann Turnbull
“Conditioning” for the Family Quality of Life Marathon
   Ann Turnbull and her husband, Rud, are Co-Directors of the Beach Center on Disability in Lawrence , Kansas.  Ann is also a Professor in the Department of Special Education at the University of Kansas.  Ann and Rud’s goal of “making the nation a better place for families with children who have disabilities” is a commitment that shines through in their work.  As a researcher, teacher, author, and parent, Ann has focused her attention on family systems, family-centered services, individualized services in inclusive settings, and quality of life issues.  She has worked extensively at international, national, state, and local levels in developing exemplary support services for individuals with disabilities and their families.  Ann and her family have experienced first hand the challenges and joys of parenting J.T., a child, and now adult with special needs.  She credits J.T. as being an “indispensable source of knowledge, her greatest teacher, and the focal point of all of her work.”
   Ann will highlight and discuss five key domains of family quality of life and will share experiences from her own family and from other families of triumphs and setbacks in “conditioning” for the family marathon across decades.  See www.beachcenter.org
To whet your appetite for our Partners In Care Conference's Keynote Speaker, Ann Turnbull, we invite you to read "Get A Life!": A Model For Enhancing the Quality of Life for Adults with Autism and Their Families by Ann and Rud Turnbull.

Special Guest Presenter: 
Patrick J. McGrath, PhD
Dr. McGrath joins us from Dalhousie University in Halifax. Dr. McGrath is an internationally recognized scholar and clinician in the area of pain research, particularly pediatric pain.
Patrick McGrath Ph.D. is speaking at ILEHP, the Interdisciplinary Leadership Education for Health Professionals Program, on December 5, 2002 at UVM, the evening before the Partners In Care Conference. It's open to the public. The class meets 6:30-8:30pm in Room 427 Waterman Bldg. Free parking in the visitor's lot across College St.  
    The ILEHP seminar will focus on Pain in Children with Neurodevelopmental Disabilities and will address some of the specific challenges associated with pain assessment in children with significant communication and cognitive impairments, and  research related to the development of a new pain measure developed specifically for this population.

General Session:
Youth in Transition: What Works and What Doesn’t?
Join us for this facilitated panel discussion with a dynamic group of young  adult leaders as they share experiences and ideas about self-advocacy. Learn about leadership activities of youth and young adults with disabilities in Vermont and nationally. 
Katie Beckett, Special Guest Presenter; Kids As Self Advocates (KASA)  See www.fvkasa.org
and our story on Katie: www.partoparvt.org/02sKatie.html
Area Youth Panel Members
Deborah Lisi-Baker, Facilitator; Executive Director, the Vermont Center for Independent Living 
See www.vcil.org
 

#1 Empowering Parents: Helping Children and Families Cope with Behavioral Issues
A child’s behavioral issues can be challenging to address and often put stress on family, friends, teachers, and the child.  Parents and educators can help teach children positive behaviors that will help them succeed at school, at home, and with their friends. This workshop will focus on concrete strategies and tools that work! Parents who are actively using these techniques will be present to offer their perspective.
Elaine Lerner, MSW, CSW, Private Consultant
See www.ADHDParentTrainer.com

#2 Summer Services Within Your Community (The Extended School Year- ESY)
This workshop is designed to help parents and professionals understand the process for determining if summer services are needed and what resources are available in your communities. Participants will learn what ESY can look like from age 3 to 21, from summer camps to summer jobs. 
Lynette Over,  VT Parent Information Center

#3 Three Keys to Living Well: Taking Care of Ourselves While Caring for Others
Learn more about incorporating healthy activities into your life!  Three panelists will present ideas and demonstrate activities for promoting health in your life, individually and in your family.  You will hear some practical information, have an opportunity to practice yoga and massage, and learn practical techniques for healthier eating. You will leave inspired to try these activities at home and share them with your family.
Lynn Grieger, RD, CD, CDE, Vermont Nutrition Consultant
Rhonda Costes, Massage Therapist
Dena Foster Dentone, Certified Yoga Instructor

#4 Achieving, Behaving, Caring: Building Family Teacher Community Partnerships to Support Children’s Early Development
This workshop will demonstrate a proven prevention model and a unique collaboration between parent-child centers, educators and families. A Parent Liaison will guide participants through the process by which parents and teachers set mutual goals and plans for consistent care-giving to support children’s early social development. Participants will receive materials on building collaborative partnerships, recruiting and training parent liaisons, and using the Action Research Cycle to work toward goals.
Cindy Coble, Facilitator; Parent Liaison
Brattleboro Parent/Teacher Team
Kim Hewitt, Consultant, School Research Office, the University of Vermont
Martha Fitzgerald, Ph.D., University of Vermont 

#5 Pain Assessment and Management In Infants, Children and Adolescents
Pain has received significant research attention in recent years and is an important quality of life issue for parents, healthcare providers, educators and caregivers of children with special health needs. A panel of speakers will present current approaches to pain assessment and management across settings. This will include a discussion of pain measurement in infants, children and adolescents, management of post-operative and procedural pain, and pain management strategies at home and in the community.
Jean S. Coffey, RN, MS, PNP, Clinical Instructor, University of Connecticut School of Nursing
Patrick J. McGrath, PhD, Professor of Psychology, Psychiatry, Pediatrics & Biomedical Engineering; Psychologist, Pain Service 
Robert Williams, MD, Associate Professor, University of Vermont, College of Medicine and FAHC Department of Anesthesiology 
Parent Representative

#6 Enhancing the Likelihood that Services Will Lead to Improved Family Quality of Life
This keynote follow-up will expand upon the Beach Center Quality of Life Survey (developed from research conducted in Vermont and in other states) that can be used (a) to guide family support with individual families and (b) to monitor services delivered to families to ensure that the services result in positive family outcomes.  Ann will suggest how the survey can be a catalyst for family action plans and service system action plans aimed toward improving family quality of life. 
Ann Turnbull, Ed.D., Co-Director of the Beach Center on Disability; 
Professor, Department of Special Education at the University of Kansas

Sponsorship and Exhibit Opportunities: Please click to see our list of sponsors & exhibitors! If your company or organization is interested in learning more about sponsoring/exhibiting at the conference, please contact Fran Campbell at (802) 764-5290. This is a wonderful opportunity to inform participants about your products, services, and programs.
Thanks to our Sponsors and Exhibitors!! 

8:00 - 9:00 Registration, Coffee/Tea & Exhibits 

9:00 - 10:15 Welcome & Keynote:
Nancy DiVenere, Executive Director Parent to Parent
Ann Turnbull, Ed.D.

10:15 - 10:45  Refreshments & Exhibits 

10:45 - 12:15 Morning Workshops
#1 Behavioral Issues    /    #2 Summer Services    /    #3 Living Well

12:15 - 1:30 Awards, Lunch, and Exhibitors

1:30 - 2:30 General Session
Youth in Transition: What Works and What Doesn't?

2:30 - 2:45 Refreshments & Exhibits

2:45 - 4:15 Afternoon Workshops
#4 ABC's    /    #5 Pain Assessment    /   #6 Improved Quality of Life

4:15 Conference Adjourns

The Family-Centered Care Philosophy: 
Family-Centered Care is a holistic philosophy that redefines the roles of families, health care professionals, educators, and communities. Family-Centered Care appreciates families as families and children as children, recognizing that they possess a wide range of strengths, concerns, emotions, and aspirations beyond their need for specialized services. Family-Centered Care: 

• Acknowledges the importance of social, emotional, and developmental support for children and their families 
• Supports families' care giving responsibilities 
• Fosters self-competence and independence in families and children 
• Respects individual and family choices 
• Builds on family strengths, promotes resilience, and honors cultural diversity 
• Promotes information-sharing and collaboration 
• Involves families in all aspects of the planning, delivery, and evaluation of services

from the North: I-89 South, Exit 3, right onto Route 107, then Route 100 South, left onto Route 4, quick right onto Access road... Go about 4 miles until sign for the Grand Hotel, take left onto East Mountain Road the Hotel is on the right.

from points East: take I-89 Exit 1 and Route 4 West until Access Road... Go about 4 miles until sign for the Grand Hotel, take left onto East Mountain Road the Hotel is on the right.

from Rutand: take Route 4 East... Go about 4 miles until sign for the Grand Hotel, take left onto East Mountain Road the Hotel is on the right.

You can contact the Killington Grand Hotel directly: Discounted Lodging is available at the Killington Grand Hotel at a rate of $99 per night, which will be guaranteed until November 5th. 
For reservations please call 1-800-282-9955. Click for Killington Grand website directions