Fall 2003 Newsletter   click for links to other newsletter pages
Medical Home Update
 
 
What are the benefits of a Medical Home?
Tips for families to build Medical Home partnerships
Medical Homes in Vermont
Medical Home Resources
 
 There’s no place like home...
“Home”… the word conjures up different memories, images and even scents for us all.  Perhaps it means a dog snuggled up to the fireplace, children laughing as they play a game, or the scent of warm cookies out of the oven.   Home is more than a house, for most of us it is a place of safety, love, support and a state of being.
Elements of a Medical Home
  • Accessible – care is provided in the community and all insurance including Medicaid is accepted.
  • Family-Centered – Recognition that the family is the principal caregiver and the center of strength and support for children.
  • Continuous – Same primary pediatric health care professionals are available throughout care of child and provides assistance with transitions.
  • Comprehensive – Healthcare is available 24 hours a day, 7 days a week and that preventative, primary and tertiary care needs are addressed.
  • Coordinated – Information is centralized and families are linked to support and community-based services.
  • Compassionate – Concern for the well-being of the child and family is expressed.
  • Culturally-Competent – Respect for the family’s cultural background which is recognized and valued.

Many families, when asked if their child has a Medical Home do not understand the phrase.  There is often a mistaken belief that it refers to a structure, their child’s pediatrician’s office.  Yet a Medical Home is to the world of healthcare, what your home is to you.  It is far more than a structure or any single individual.  It is a state of being, a coordinated and respectful health care partnership between a child, his or her parents, and the child’s primary care doctor.

The American Academy of Pediatrics has developed guidelines for Medical Homes including a list of elements that helps to define the philosophy (see sidebar).  One of the keys to a Medical Home is that the parents and pediatricians act as partners in the care of the child.  This includes ensuring the family is knowledgeable about the resources in the community and able to access all medical and non-medical services necessary to help the child and family achieve their goals.
 
 

What are the benefits of a Medical Home?
Some parents may question why they and their children might want or need a Medical Home.  A Medical Home provides an opportunity to develop a long-term relationship with the same doctor, nursing and office staff.  This means there is someone who knows your family and child, knows how to communicate effectively with you, and appreciates the exchange of knowledge that happens in a long-term relationship.

A Medical Home can help you get connected to information, resources and family support organizations.  It is an atmosphere where you can raise any issue, even if it is non-medical.  Your family feels supported in all stages of growth and development of your child and helps you prepare in advance for the challenging transition to an adult health care provider.

Tips for families to build Medical Home partnerships
You may already have a Medical Home.  If so, please take a minute at your next visit to thank your child’s provider and office staff for providing a Medical Home.  To help determine if you do, review the checklist and trust your own instincts.  How you feel about the care your child receives speaks volumes.

Checklist:
Yes  |  No
  __ | __    Do you think the pediatrician’s style fits your needs and those of your child?
  __ | __    Can you talk easily with this provider? Are there language or cultural barriers?
  __ | __    Do you feel heard and respected for your knowledge?
  __ | __    Is the office location convenient and accessible?
  __ | __    Is there someone available to help with questions and concerns 24 hours a day/7 days a week?
  __ | __    Does this provider accept your health insurance?
  __ | __    Do you get connected to resources and supports in your community and to statewide organizations?
If you answered yes to all of these questions, you are likely to have a Medical Home.  If you answered yes to some, your pediatrician may be on the road to becoming a Medical Home.  Take a moment to acknowledge those components of a Medical Home that are already in practice, and encourage him/her to work with the Vermont Medical Home Project on the other elements.  Parents can and do make a big difference in the development of a Medical Home.  Kim Daniels is a parent partner, a kind of “parent consultant” for Dr. Lou DiNicola’s practice.  She found it was “validating to be considered an ‘expert’ in what would make this place a home.”

Regardless of whether you have a Medical Home for your child or not, there are easy steps you can take to enhance your relationship with your child’s provider. When you visit your child’s doctor office, be prepared.  Bring a list of questions or concerns to discuss.  Share information on how your child is changing.  Ask about resources that may help your child and family and find out how to get care after hours if needed.

Take the time to meet with the staff that will be working with you and your child.  Be prepared to express what resources you may need help finding, any special challenges you and your child are facing, and be ready to partner with your child’s pediatrician.  You both have valuable knowledge and information to share that will result in better outcomes for your child.

Medical Homes in Vermont
Although it may seem like a new concept, Vermont has been part of the Maternal and Child Health/AAP Medical Home Initiative for the past six years.  Carl Cooley, MD and Jeanne McAllister, Co-Directors of the Center for Medical Home Improvement at the Hood Center for Children and Families at Dartmouth Hitchcock Medical Center were part of the first wave of funded Medical Home Projects in the country. In 1997 the Center began working with pediatricians and their practices in both Vermont and New Hampshire.  Dr. Lou DiNicola in Randolph and Dr. Mark Harris in Bradford have both been part of this initiative since its inception – four more practices in Vermont are now part of the Hood Center Medical Home Expansion Project.  All six sites are well underway and have parent partners incorporated into their practices.
Parent Focus Groups
The Vermont Medical Home Project will be conducting a series of focus groups around the state beginning in mid-September and running through the fall.  Please join other parents from your area to provide information and feedback on healthcare in our state.  The Vermont Medical Home Project wants to know about your relationship with your child’s healthcare provider and your experience with the Medicaid system. 
If you are interested in participating, call Hilde Hyde, Healthcare Financing and Medical Home Coordinator at Parent to Parent, at 802-728-2263
We hope to see you this fall!

The Vermont Medical Home Project is an initiative of the Vermont Department of Health and the American Academy of Pediatrics – Vermont Chapter.  Kim Aakre, MD is the Medical Director of the project and has the ambitious and fulfilling job of introducing the Medical Home concept to all Vermont pediatricians and helping them move towards becoming a Medical Home.  After an initial round of letters and informational materials, Kim is now heading out for site visits and is working with a few interested sites to develop some key components.
 
Parents have an important role to play in the development of Medical Homes.  Participate in a focus group (see details at right).  Get involved and engage your pediatrician in a discussion about what is helpful in his/her practice and what elements of a Medical Home might be missing.  Take a moment to explain what a Medical Home would mean to your family.

Kim Daniels offers some final words of encouragement: “To other parents who would like to develop a Medical Home, I would encourage them to take ownership in making this happen.  Parents are the experts and when they are not at the table the real change cannot happen.”   ©
 
 

To learn more about Medical Homes,
check out the following resources:
  • Vermont Medical Home Project Kim Aakre, MD, Medical Director Tel 802-436-1619,  email  kaakre@vermontel.net
 


Fall 2003 - In this Issue:
Board & Staff Update
Family Support Report
Supporting Parent Honor
Family Voices of Vermont
Partners In Care Conference '03
Inn Raffle #2!
Family Story Update: Demeritt
Our Calendar | News & Note

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