Fall 2003 Newsletter   click for links to other newsletter pages
Partners in Care Conference --info from our 2003 Brochure

This Conference date has passed...
It was on December 4th, 2003;
thank you to all who participated and made it such a success!


The Partners In Care Award recipients were Connie Curtin and Phyl Macomber! (click to read Award Press Release)
View a webfile containing the 40 slides of Dr Prelock's Keynote presentation -> click here (then click on the slide titles to view each)
Stay tuned as we are able to post brief workshop notes, if available.

Theme, Keynote, & Workshops
Schedule
Registration Info   |   Registration Form
Exhibitors/Sponsors
Info about PIC Award
Directions

Format:This event brings together a community of families, health care professionals, social services professionals, educators, childcare providers, and policy makers from around the state for a collaborative day of learning, sharing, and celebration. The day-long conference includes interactive morning and afternoon workshops, which address different topics for professionals and families with children with special needs ages birth to three, school age, and including young adults making the transition into adulthood.  The conference also includes exhibits by for-profit and non-profit organizations, the Partners in Care Award, and lunch.

Theme, Keynote, & Workshops:
This year’s theme was "Transitions and Transformations".

Keynote Address:
Family Centered Care: The Art of Transformation
Patricia Prelock, Ph.D., CCC-SLP
Family centered care is a frequently used term and espoused value. But what does it really look like in practice? When professionals and family members are active participants in care, transformation begins and better outcomes emerge. This transformation is not a final destination, it is an ongoing process of discovery and understanding.
Join us for an insightful journey as our keynote speaker, Dr. Patricia Prelock, takes us through her experiences as a family-centered care practitioner. Dr. Prelock will discuss the role of families and professionals in creating partnerships to enhance communication with and assessment of children with special health care needs. This presentation is sure to affirm, renew, and inspire!
Dr. Prelock, Ph.D., CCC-SLP is Professor and Chair in the Department of Communication Sciences at the University of Vermont, and Training Director for the VT-Interdisciplinary Leadership Education for Health Professionals.

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Morning Workshops: 10:45 - 12:15

1. The A, B, C's of Transition from School to Adult Life
Transition from school to community is a process, not a single event.  This session will outline some strategies, timelines and techniques, which will ensure that transition is a long-term, collaborative process, including the student and family, school personnel, and adult service providers.
Presenters:
Bryan Dague, UVM Center on Disability & Community Inclusion 
Dianne Chandler, Employment Associates-Middlebury
Marian Connor, Mt. Abraham Union High School

2. Creating Infant & Toddler Environments that Inspire
Creatively constructed environments can facilitate a child’s learning and development. Learn about and explore ways of choosing materials and creating home and childcare settings that inspire wonder and provoke young children’s interests. This interactive workshop will invite participants to share stories about their own settings and discover ways of enhancing their environments for the benefit of all children.
Presenters: 
Kristin McAvoy & Heather Radtke Child Development Specialists, UVM’s Campus Children’s Center
Michelle Lewis, Developmental Educator - Family, Infant and Toddler Program
Parent Representative

3. Movement, The Language of Children
This session will focus on the basic concepts, methods, applications and benefits of movement in working with children and youth with and without disabilities.  Explore awareness of our own nonverbal communication styles, their effects in interactional dynamics with others, and experience first-hand the benefits of and stress reduction from expression through movement. Be prepared to move!
Presenter: 
Will Freeman, Ph.D., ADTR, University of Vermont

General Session - “We’re Special Too!”
Cindy Hayman and Monica Hutt will moderate a panel of brothers and sisters who will discuss life with siblings who have special needs. Panelists will share the challenges and gifts of their personal experiences, including the daily routines, transitions, the unexpected, and celebrations. They will also discuss particular steps they have taken to pay attention to their own well-being.
Cindy Hayman, MSW, Social Worker at Children with Special Health Needs and facilitator of local SibShops
Monica Hutt, Director for Children and Family Programs at Howard Community Services, Facilitator of local SibShops
Special performance by Kids on the Block Vermont

Afternoon Workshops: 2:45 - 4:15

4. Sensory Integration: Fact or Fiction?
Sensory Integration is a frequently recommended therapy for children with a variety of disabilities and needs.  Carol Andrew will provide a common sense approach to incorporate strategies for Sensory Integration at home and in programs.  The theory of Sensory Integration will be discussed in detail and then applied to choices of toys and environments for learning for parents, teachers, and other professionals working with children with special needs.
Presenter: 
Carol Andrew, EdD, OTR, Child Development Program, Dartmouth Hitchcock Medical Center

5. Demystifying Children’s Mental Health
Your child’s angry outbursts come unexpectedly. Your teenager is having suicidal thoughts. Your pre-school son is asked to leave day care.  Parents often feel isolated, confused, frustrated: Where do you go with your concerns? What is a psychological evaluation? What happens after a diagnosis? What is the current thinking about medications and treatments?  Join a panel of mental health professionals for a dynamic discussion about these questions and other concerns related to children’s mental health.
Facilitator: 
Peggy Sax, Ph.D., Family Therapist and Consultant, Middlebury, VT 
Sarah Chamberlain, Director of Family Education, National Alliance for the Mentally Ill
Jeanne Greenblatt, MD, MPH, Consulting Child and Adolescent Psychiatrist
Gail Rafferty, LICSW, Early Childhood Program Coordinator at Baird Center for Children and Families, Burlington
Dan Silverman, Psy.D., Licensed Psychologist-Doctorate, Independent Practice in Burlington area

6. Advocacy – Paving the Road to Acceptance 
When children are being picked on in school or in the neighborhood, on the playground or the school bus, the road can be very rocky indeed.  This workshop will examine the role of parents in modeling or “setting the attitude” for teachers, other parents and their child’s peers. Participants will use some basic mediation techniques to improve their communication  and develop a range of creative strategies to bring to the table when dealing with difficult situations.
Bev Heise, Parent/Educator, Consultant with the Department of Education, supporting schools in developing Educational Support Systems and Educational Support Teams.
Coby Heise Coby has lived most of his life with several disabilities, including Diabetes, Tourette Syndrome, Obsessive Compulsive Disorder, Attention Deficit Disorder, and Scleroderma.  He has had many experiences in which his disabilities were an obstacle to overcome, including being a high school and college student-athlete.  Coby is currently the owner and chief web developer for Creation By Design, a web design outfit in South Burlington.

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Schedule
Partners in Care
Thursday, December 4, 2003 

8:00 - 9:00 Registration, Continental Breakfast, Coffee/Tea & Exhibits 

9:00 - 10:15 Welcome & Keynote
 Nancy DiVenere, Executive Director Parent to Parent
 Patricia Prelock, Ph.D., CCC-SLP

10:15 - 10:45  Refreshments & Exhibits 

10:45 - 12:15 Morning Workshops
#1 Transition to Adult   /   #2 Infant & Toddler Environments   /   #3 Movement

12:15 - 1:30 Awards, Lunch & Exhibits

1:30 - 2:30 General Session
“We’re Special Too!” Sibling Panel

2:30 - 2:45 Refreshments & Exhibits

2:45 - 4:15 Afternoon Workshops
#4 Sensory Integration   /  #5 Mental Health    /   #6 Acceptance

4:15 Conference Adjourns

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Registration:Click to printout Registration Form. If you attended the conference in 2000, 2001, or 2002 and we have your current mailing address, we will automatically mail you a brochure.  All other interested parties, please contact Rachel DiGiammarino at (802) 764-5290 ext 31 or 1-800-800-4005. Registration materials should be available by late September.
Conference Fee (includes lunch)
 $80 – Between Nov 8 - Nov 25, 2003
 $70 – Early Registration fee; before Nov 7th
 $35 – Parent/Guardian registration fee
          (Scholarships available for Parents and family members; please call Parent to Parent 1-800-800-4005)
 $35 – Student or Childcare Provider rate.
                  (Non-refundable)


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Thank You to Our
Partners in Care Conference 2003
Sponsors & Exhibitors
Last Updated: 11/04/03
Presenting Sponsor
Vermont Department of Health, Children with Special Health Needs

Gold Sponsor - $1,000 and up
IDX Systems Corporation
Lintilhac Foundation
Part C of IDEA, VT Early Intervention: Family, Infant & Toddler
    Program and the Vermont Interagency Coordinating Council
Social & Rehabilitative Services – Child Care Services Division
Vermont Department of Education

Silver Sponsor - $500 and up
American Academy of Pediatrics - Vermont Chapter
Associates in Physical & Occupational Therapy
UVM Center on Disability and Community Inclusion
VT Dept of Prevention, Assistance, Transition & Health Access (PATH)

Bronze Sponsor - $250 and up
Blue Cross and Blue Shield of Vermont
New England Medical Systems
RehabGYM 
Vermont Department of Aging and Disabilities
Vermont Interdisciplinary Leadership Education for Health Professionals
Visiting Nurse Association of Chittenden and Grand Isle Counties
Wee Works of Williston, LLC-Pediatric Occupational Therapy
Yankee Medical 

 Exhibitors
Autism Society of Vermont
Baird Center for Children & Families
Brattleboro Retreat
Champlain ARC/ARC of Vermont
Crazy Quilters
The Joshua Project
Kids on the Block
Landmark College
Maximus
Partners In Adventure
Pine Ridge School
Prevent Child Abuse Vermont
Special Olympics Vermont
Stern Center For Language And Learning
VDH-CSHN-Universal Newborn Hearing & Hearing Outreach Program
Vermont Adaptive Ski and Sports 
Vermont Assistive Technology Project
Vermont Association for the Blind and Visually Impaired
Vermont Center for the Deaf & Hard of Hearing
Vermont Parent Information Center

Scholarship Fund
Mousetrap Pediatrics, St. Albans
Rainbow Pediatrics, Middlebury

In-Kind Donations
Office Quarters

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Sponsorship and Exhibitor Opportunities: If your company or organization is interested in learning more about sponsoring and/or exhibiting at the conference, please contact Rachel DiGiammarino at (802)764-5290 ext 31. This is a wonderful opportunity to inform participants about your products, services, and programs.©

Directions:
Sheraton Burlington Conference Center
Williston Rd., So. Burlington, Vermont
Immediately off Interstate 89, Exit 14W
Phone: 802-865-6600

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Partners in Care Award:
Each year Parent to Parent honors one or two individuals who exemplify and promote the ideals of family-centered care. We would like to invite you to nominate an individual(s) within your community who you believe exemplifies the ideals of the Family-Centered Care Philosophy (see explanation below).  For a nomination form, contact Fran Campbell at (802) 764-5290 ext 21 or print the form from our website and mail it to Parent to Parent’s Williston address.  Click for Nomination form for PIC Award 

The Family-Centered Care Philosophy:
Family-Centered Care is a holistic philosophy that redefines the roles of families, health care professionals, educators, and communities. Family-Centered Care appreciates families as families and children as children, recognizing that they possess a wide range of strengths, concerns, emotions, and aspirations beyond their need for specialized services.
For a more detailed description of Family Centered Care click here

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View a list of Past Recipients of the Partners in Care Award:
Partners In Care Award
Past Recipients
1995-2003
1995Carol Hassler and Children with Special Health Needs - Personal commitment to family-centered care, leadership and support in incorporating family-centered care within CSHN, administrative and staff support of children and families.

1996 - Debra Lisi Baker and David Baker - Inspiration and leadership in disability movement in Vermont and nationally: starting the Vermont Independent Living Center; state and national advocacy on behalf of individuals with disabilities; and administrative support of family-centered care, promoting opportunities to incorporate the ideals in planning and evaluation at the state level.

1997 - Mark Sustic - Modeling leadership in family-centered care in early childhood programs and partnerships at the local and state level.

1998 - Don Swartz, MD and David Stifler, MD - For their partnership with Parent to Parent in creating the Medical Education Project.

2000 - Senator James Jeffords and Maureen Mitchell - For significantly influencing family-centered policies and practices on local, state, and national levels.

2001Peter Youngbear and Kim Keiser - For their vision, leadership, and voice in effectively promoting the principles of family-centered care at the local, state, and national level.

2002Debbie O’Rourke and Tracey Wagner – Two outstanding women who reflect the essence of family-centered care and who, through their passion and commitment, have enhanced the quality of life for many families and children in Vermont.

2003Phyl Macomber and Connie Curtin - These honorees epitomize the philosophy that families possess a wide range of strengths and aspirations beyond their need for specialized services for their child.

 

Theme, Keynote, & Workshops
Schedule
Registration Info   |   Registration Form
Click for Exhibitors/Sponsors
Info about PIC Award
Directions
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Fall 2003 - In this Issue:
From our Director
Board & Staff Update
Thank you, Richard Tarrant!
Family Support Report
Supporting Parent Honor
Vermont Medical Home Update
Family Voices of Vermont
Partners In Care Conference '03
Inn Raffle #2!
Family Story Update: Demeritt
Our Calendar | News & Note

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