Fall 2005 Newsletter   click for links to other newsletter pages
Community News:
ASD Support Group Story
 How did Champ meet us in 4 different ways?
 Therapeutic Riding Story- Patrick's a Winner!

 
Community News




Members of Autism Support Daily meet with Congressman Bernie Sanders

Lynn and BernieAutism spectrum disorders (ASDs) are a group of developmental disabilities that typically involve delays and impairment in social skills, language, and behavior. Autism is a spectrum disorder, meaning that it affects people differently. How big is the issue?  Currently, one of every 166 children is currently being diagnosed with autism spectrum disorder.  Some children may have speech delays, while others may not. Generally speaking if these children are left untreated, many with will not develop effective social skills and may not learn to talk or behave appropriately. In most cases there is nothing about how a person with an ASD looks that sets them apart from other people, however, they may communicate, interact, behave, and learn in ways that are different from most people. The thinking and learning abilities of people with ASD's can vary – from gifted to the severely challenged. Autism is the most commonly known type of ASD, but there are others, including “pervasive developmental disorder-not otherwise specified” (PDD-NOS) and Asperger Syndrome.  (Above)
Lynn George, Autism Support Daily co-founder, with Congressman Sanders

As a support group of over 170 parents of children with autism here in Vermont, there is a great interest by Autism Support Daily to both learn and teach about this condition. The group meets regularly at the Parent to Parent of Vermont office in Williston and also meets in New Haven. At these meetings guest speakers are invited to address a variety of topics.  Often family get-togethers are scheduled and an online message board connects parents allowing them to discuss a variety of topics via email, 24 hours a day, 7 days a week.

Since the group's inception two years ago, the topics of most interest among parents have been: (1) special education (2) the removal and recall of mercury from childhood vaccines (Thimerosal) (3) the effects the environment has on the population (4) the general lack of doctors experienced in biomedical issues as they pertain to children with ASD in Vermont, and (5) respite care for parents of all children with special needs. 

Because of these serious concerns, it was decided that a discussion with Vermont’s elected member of the U.S. House of Representatives would be in order.  A contact was made with Congressman Bernie Sanders’ office and arrangements for a meeting between several members of Austism Support Daily and the Congressman was scheduled.  This meeting took place on August 8 and lasted for approximately two hours.  During that time it became clear that Congressman Sanders was anxious to hear the groups concerns, eager to better understand the most vexing of the issues, and committed to finding a way that he might, as a legislator, be in a position to be of assistance. The group was excited at the prospect of bringing news about autism from a family perspective to the Congressman. While it was obvious that he was well informed about the issue of autism specifically, and health issues generally, we also believe the Congressman found the family perspective most beneficial. This was evidenced by that fact that at one point he appeared surprised at the number of persons diagnosed with autism in Vermont and the breadth of the challenges facing the families on the most fundamental levels of care.

For more information on the link between childhood vaccines and autism, visit:
http://www.autismwebsite.com/ari/vaccine/vaccine.htm

For more information about Autism Support Daily, visit us at:
http://www.autismsupportdaily.com/
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first game ChampHow is Champ involved with us in four events?

Champ Story #1 (a first baseball game for Mason)
Former staff member, Rachel DiGiammarino & her son Mason at his first baseball game! Champ must have been excited to meet him-- and how he's grown! (see their 2003 Family Story in the NICU)


Champ Story #2
(with MDA Ambassador and his family)
Adam Wechsler is the Muscular Dystrophy Association's (MDA) Goodwill Ambassador for 2005. As a family, the Wechslers chose to accept Adam's position so they could give something back to the MDA, to be involved in a positive way, to help raise awareness, and to give Adam a voice in a fun venue.
Adam was a Team Captain, enlisting his friends from school and elsewhere, for the MDA's 1st Annual Stride & Ride, which raised over $3,500. They presented MDA with the check on live TV at the Jerry Lewis Annual MDA Labor Day Telethon on Channel 22 and enjoyed meeting Champ, the VT Expos' mascot.
the interview
(Joanne, the Mom, is a Family Support Coordinator here at Parent to Parent.)
They eagerly look forward to next year's events.
Adam Wechsler
Above right: Adam is interviewed on TV
At left: Adam Wechsler- the MDA Goodwill Ambassador,
At right: the Wechsler family; David, Joanne, Adam (age 9), Jacob (age 6), and Champ.

Wechslers
Champ Story #3
(with a Supporting Parent supporting MDA)

Supporting Parent,
Michelle Jetti with son Derek participating at the MDA event




Champ Story #4
(he was there at the Expos Game)
Volunteer 50/50 Raffle Ticket Sellers at the Vermont Expos Game in August helped raise $390!

Madeline, Julianne, Jen, and Susan
Danielle, Steve, TrishThanks to:
Steve & Trish Mason
Danielle Viau
Jennifer Carbee
Susan Maude
Michele & Kent Krehbiel
Michael Giangreco
Mary Beth Doyle
Julianne Nickerson (with Madeline)
Special thanks to
Susan Torncello for organizing the event for us!

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Thanks for Camp"Thanks for Summer Camp!"
Patrick began therapeutic horse riding in April 2004.  He has long been known to have sensory issues, and I had heard that riding can have a beneficial effect on children like him.  Although I do not understand exactly how it works, riding seems to 'wake something up' in him, particularly in speech production and behavior patterns. 
Therapeutic riding helps Patrick's confidence, balance, and muscle strength. (The movements of the horse help to build muscle strength, which in turn improves balance.) He becomes more aware of the world around him, and his positioning in it. He loves animals, so this 'therapy' is pure fun for him, and he is very proud of himself. He has even participated in special horse shows and won ribbons!  I am thrilled to be able to continue his weekly visits to the farm, and with the help of Parent to Parent's summer camp assistance, Patrick had a week of summer camp at the farm that he absolutely loves. 
Thanks Parent to Parent! Lisa & Patrick Bushey
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Click for information on various Parent to Parent of Vermont Family Support Funding.
For more information about therapeutic riding resources, please contact Family Support at (802) 764-5290 ext. 11.
Patrick
Patrick with horse TaraPat and Tara

Fall 2005 - In this Issue:
Family Connections: Button Story
From Our Director: When People Work Together

Conference Fund: Rasmussen Story
Families Who 'Give Back'
: Tom Sustic Fund
Where's the Waste Update


Parent to Parent News: Library & Funding
Family Voices of Vermont
Thanks, Development & Outreach
Our Calendar | News & Note

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