| Spring 2006
- In this Issue: Vermont Teen on National Board From Our Director Don't Sell My Boy Short! Sotos Syndrome Conference Updates (plus 2 articles on Autism) Ethan's Fairies Join Our Listserv! Heartfelt Thanks Our Calendar | News & Note | Raffle |
|
VT
Teen Serves on National Board Fifteen-year-old
Samantha Henault, or “Sam” as she is referred to by many who know her,
is from
Island Pond, and she is most definitely not your typical teenager. For the past year and a half, Sam has served
on the national advisory board for Kids As Self Advocates (KASA) and is
its
youngest member. In her role as board member, Sam organizes projects,
participates in conference calls, and flies to different cities to
attend board
meetings. In addition to her advisory board activities and attending
high
school, Sam is on the North Country Union High School Junior Varsity
basketball
team, and an AAU basketball team. Sam
has also been diagnosed with ADHD and dyslexia. She describes everyday
classroom expectations and homework assignments as exhausting
challenges. “Many
of my teachers have no idea what it’s like living with a disability,”
she says.
“I think they look at me and see a slacker, not a kid who’s working
100% harder
than everyone else just to stay focused.”
Her
grandmother adds emphatically, “All my life I’ve believed that
given the right
supports, anyone can do anything. It sounds naïve, but I believe
it’s true.
Look how far we’ve come already!” The
advisory board that Sam serves on is a national, grassroots network of
youth
with disabilities. Sam describes KASA’s work in this way: “We are an
organization that seeks to improve laws around persons with
disabilities and we
help others be advocates and speak for themselves.” As part of her
commitment
to KASA, this year Sam organized a project around how people can speak
out on
health issues. Sam
says that being on the advisory board has benefited her “I now
speak up at
meetings wherever I go, even in school. Before I would just sit there
and not
say things I wanted to say.” Sam
would like to see people be more open-minded about disabilities. And in
her
role as a spokesperson for youth with disabilities, she has this to say
to
other youth with disabilities, “Don’t let people intimidate you! Be
heard!” Julie
Sipchen, the KASA project director, calls Sam, “a great advocate
and a super
role model.” We couldn’t agree more. ©
(KASA’s
website: www.fvkasa.org)
Thank you to Cal Workman, who volunteered to research and contribute to this article. |
Spring 2006 - In this Issue:
Vermont Teen on National Board
From
Our Director
Don't Sell My Boy
Short!
Sotos Syndrome
Conference
Updates (plus
2 articles on Autism)
Ethan's
Fairies
Join Our
Listserv!
Heartfelt Thanks