Spring 2006 Newsletter   click for links to other newsletter pages

Newsletter Updates
& Info


w 
Assessment on Autism Needs in Vermont
w  What about the Youngest Children with ASD?
w  MD Advocacy Conference Update
w  Thanks for the Respite Funds


What about the Youngest Children with ASD? by Ann Dillenbeck

About one year ago, a friend asked me to join her in a project. Vanessa Khouri Smith invited me to help her write an article about developing early intervention plans for children with autism spectrum disorders (ASD). As Patti Prelock, Professor and Chair with the Department of Communication Sciences at the University of Vermont, was Guest Editor for the journal issue, we were to have the support of a wise mentor and skilled therapist. Our goal was to write about our experience working with families whose children had been diagnosed with ASD as early as their second birthday. To prepare the article, Vanessa and I first reviewed the scant research describing effective intervention programs for children with ASD under the age of 3. We also drew upon the wealth of evidence that intensive early intervention is critical in improving outcomes for children with ASD and their families. Next, we gathered accounts of successful strategies from our own home and community visits with children and their caregivers. Finally, we placed our knowledge about the youngest children with ASD in the context of best practices in early intervention.

As a result, this article emphasizes family centered care in developing an early intervention team and in designing and implementing the intervention plan. It underscores the importance of understanding family and childcare routines. The article recommends that teams address children’s engagement, independence, and social relationships, three alternatives to the traditional domains of motor, speech, adaptive, and cognitive skills. It explores ways interventionists may provide families with emotional, material, and informational support. Last, but certainly not least, the article discusses the team’s evaluation of the early intervention plan for effectiveness, feasibility, and relevance, and its focus on the transition between early intervention and special education services at the child’s third birthday.

As family members, caregivers, and interventionists read the article, I hope you will recognize your own experience and work with children with ASD. Vanessa and I attempted to include your suggestions and reflections, as in one parent’s account of the emotional support she received through Parent to Parent and one childcare teacher’s adaptation of circle time to facilitate a child’s engagement and independence. For me, this project was both a celebration of successes to date and a call for further research about effective programs for the youngest children with ASD. ©

“Developing and Implementing Early Intervention Plans for Children with Autism Spectrum Disorders,” a journal article in Seminars in Speech and Language, Volume 27, Number 1, February 2006, published by Thieme Medical Publishers, Inc. and written by Vanessa Khouri Smith, Speech-Language Pathologist with the Visiting Nurse Association and Ann Dillenbeck, Developmental Educator with the Family, Infant and Toddler Program at Parent to Parent of VT
To order a copy of the journal, contact: Thieme 333 Seventh Avenue; New York, NY 10001; 1-800-782-3488; E-mail: customerservice@thieme.com

Assessment on Autism Needs in Vermont

Claire Bruno, Autism Consultant at the Department of Education and Clare McFadden, Autism Specialist at the Dept. of Disabilities, Aging, and Independent Living were hired in June of 2005. The main focus of their jobs is to develop a Vermont system of support to individuals with autism spectrum disorders (ASD) in school, home and community. Their first task has been to conduct a statewide assessment of what is currently available in the educational and human services systems, determine the gaps in services and supports, the impact on families, and future projected needs. Clare and Claire are also reviewing research-based interventions for teaching and supporting individuals with ASD. Their findings thus far are reported in the “Vermont Interagency White Paper on Autism Spectrum Disorders” CLICK to download the White Paper, a 74 page Word document (also was available at  www.dail.state.vt.us or www.state.vt.us/educ/ under “What’s New.”) Next steps include starting the process of filling in the gaps identified.

As mentioned, Claire and Clare will primarily focus on improving the systems of support in education and human services. They generally do not consult on individual cases. However, they will provide ideas, information, and resources via phone to individuals, families, or teams. They are available to work with schools or agencies to develop their support systems. Claire Bruno can be contacted at 828-5116 or clairebruno@education.state.vt.us and Clare McFadden can be reached at 241-2863 or clare.mcfadden@dail.state.vt.us ©

NE Contingent at the MD Advocacy ConferenceMD Advocacy Conference Update

The New England Contingent at the Parent Project Muscular Dystrophy Advocacy Conference in Washington D.C. met in February 2006. In the photo are Amanda Becker and Mike and Ron Chorzewski from Massachusetts, Brian and Alice Denger from Maine, Joanne Wechsler from Vermont and Lori Safford from New Hampshire. While in Washington, we had an opportunity to meet with staff from our commensurate federal legislative offices. Senators Leahy and Jeffords, along with Representative Sanders all supported our efforts and signed our letters requesting increased federal funding for epidemiological studies and scientific research related to muscular dystrophy. We also had tremendous support from Maine, Massachusetts and New York.  Parent Advocacy does make a difference! © 
See Joanne’s first article from our Spring 2005 newsletter.



Thank you...The Shea's

 ...for the Respite money for me and my family. We took a family trip to Florida. We had a wonderful time and it was very relaxing and bonding for me and the girls. We could  never have done this trip without the funding that you allowed us to take this trip and we are very thankful to each and every one at Parent to Parent that is willing to work and help out families.

The Shea Family ©
For info on various funds including Respite funding, click this link.

  
Spring 2006 - In this Issue:

Vermont Teen on National Board
From Our Director
Don't Sell My Boy Short!
Sotos Syndrome Conference
Updates
(plus 2 articles on Autism)
Ethan's Fairies
Join Our Listserv!

Heartfelt Thanks 

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