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Any parent who has searched for high quality,
local child care knows the challenges that search can bring. Long
waiting lists, high cost and high turnover
rates in staff can leave parents wondering if they should just stay
home until their child
starts school. Parents of children with special health care needs (CSHCN) may not have a choice. Many have to stay home because of their child’s fragile health or feel they cannot comfortably enroll their son or daughter in a child care setting because of other special needs. Although child care providers do have to
comply with the Americans with Disabilities Act, that is helpful only
if the needed accomodations are
considered reasonable. If a child has complex medical needs, mobility
issues that require ramps or elevators, or other needs that would
fundamentally alter the nature of a program or pose an undue financial
burden, accomodations do not have to be made. In many cases, a child
care provider may be willing to make accomodations, but parents feel
the
risk of the child care setting is too great.“I was an elementary special ed teacher when my son became ill and eventually disabled. After a few months of trying to work, my husband and I decided that we could not function with both of us working and I left my job - because of my son's needs. Even though he is now in kindergarten, I still cannot hold a job due to his medical issues and child care needs after school. I have no idea who would care for him if I wanted to work.” – Valerie Richardson Other barriers to child care settings for CSHCN apply to many families regardless of their child’s health or ability. Cost is a major barrier for many families. Child care subsidies are available, however Vermont uses outdated 1999 federal poverty level guidelines to determine eligiblity. A family may be eligible for both Dr. Dynasaur and WIC, yet not be eligible to receive a child care subsidy. A family of four earning a median wage in Vermont would require 21% of their income to go towards child care if two children were preschoolers. Availability of high quality, convenient child care is a challenge for many families. Many providers have no openings, or operating hours do not meet the families’ needs. Turnover in staff at many centers is a constant struggle for the directors of the programs, contributes to decreasing quality of care and negatively impacts the development of the children in their care. Turnover is exacerbated by low wages and poor benefits. Child care workers need livable wages and health benefits, yet many parents cannot afford to pay higher child care costs. The child care community and families have to work together to raise these issues and advocate for better wages and training opportunities for providers in order to benefit all children. Although it can be challenging to find the right child care provider for your child, often families have no choice: they have to work and therefore need child care. Many families are forced, because of limited choices, to choose a setting for their child that may not be optimal. Yet child care can make a world of difference in the life of a CSHCN. The opportunities for early socialization, structure and learning can help a child make great strides developmentally. What resources are available to help a family with a CSHCN find appropriate child care? Depending upon the need of the child, there may be wonderful supports and services. Other children, fall through cracks in the system that are, in fact, chasms.
Healthy Child Care Vermont is a partnership between the Child Development Division and the Department of Health. Local public health nurses can provide health consultation supports to child care providers, including facilitating a planning process to help a provider feel confident about working with CSHCN. They can help find and access training for providers, and can provide support around key health issues such as asthma and diabetes management, and child safety in the child care setting. If your child is enrolled in the Family Infant and Toddler Program (FITP) or Essential Early Education (EEE), talk with your Coordinator about options for supports in a child care setting. Having the service providers (those associated with FITP or EEE, such as Developmental Educators, SLPs, and others providing direct service) go to the child care setting to provide of some of the services can help both your child and her child care provider learn needed skills. An added benefit is that the children in class with your child may pick up signing skills to help communicate with your child. The Developmental Educator can help the child care provider learn techniques for better supporting your child in their setting. Contact the Child Development Division, Department for Children and Families, for other programs that may help to support your child in a child care setting. All parents want quality child care for their children. It is important to be informed consumers of this service. This involves knowing what questions to ask providers, how to be an advocate for your child and how to work to create a better system of care for all children. © Resources:
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Spring 2007 - In this Issue:
The Child Care
Challenge
From Our Director
Edward's Story
Circle of Friends:
Popcorn & Skittles
Lindsay Sibling
Story
Family Voices: High
Tech Nursing
Thanks (Walkathon)
Conferences