Other Resources

Other Great Resources!

Welcome to the Family Village, a global community that integrates information, resources, and communication opportunities on the Internet for persons with mental retardation and other disabilities, their families, and those that provide them services and supports.
Also link to the Family Village Internet Guide. This is a fantastic site for links!

A national grassroots network of families and friends speaking on behalf of children with special health care needs.

Beach Center on Disability -- is a research and training center that has been federally funded since 1988 to conduct research, offer training and technical assistance, and disseminate information on family issues when there is a child with a disability in the family. Research and Publication button will get you to all published articles, including research, fact sheets, grantwriting etc.

Parent to Parent USA - National Parent to Parent website. Find a state Parent to Parent program nearest you.

http://www.fathersnetwork.org/

The Charles A. Dana Medical Library is a health sciences library serving the needs of professionals and students in medicine, nursing, allied health and biomedical fields at the University of Vermont and Fletcher Allen Health Care. Unaffiliated individuals or organizations are encouraged to ask about our Health Research Affiliates program.

This updated website is designed specifically for PARENTS, THERAPISTS, EARLY CHILDHOOD PRACTITIONERS, and EARLY INTERVENTIONISTS who want to learn more about effective practices that are based on research evidence. If you have a moment, look at the website and register to receive updates alerting you to new additions to the products page.

Child & Family WebGuide describes trustworthy web sites on topics of interest to parents and professionals. Easy access to the best child development information on the Web: http://www.cfw.tufts.edu/topics_by_age.asp

One-stop portal offers ADA links: offers visitors over 3,000 documents pertaining to the Americans with Disabilites Act. http://www.adaportal.org

www.adawatch.org - The ADA WATCH campaign is a nonprofit informational online network designed to activate the disability community's grassroots in response to threats to civil rights protections for people with disabilities.

Administration on Developmental Disabilities (ADD)

Transistioning to Adulthood Links:
http://archives.communityinclusion.org/transition/familyguide.html | http://hctransitions.ichp.edu/ | http://www.communityinclusion.org/transition/providerguide.html

Brookes Publishing Co. has a free, searchable dictionary that contains more than 3,500 concise and reliable definitions of disorders, assessment tools, based on their "Dictionary of Developmental Disabilities Terminology". It's available at
http://www.brookespublishing.com/dictionary/index.htm

http://www.nichcy.org The National Information Center for Children and Youth with Disabilities

http://www.generalpediatrics.com A site with many links

Family Voices' Kids as Self-Advocates - KASA

http://www.geocities.com/Heartland/Village/9021/links.html - KidPower Special Needs Links

A comprehensive federal web site designed to serve people with disabilities, birth through death, was launched at http://www.disabilityinfo.gov. To "provide individuals with access to a single point to go online for Government information and resources related to disabilities and to the New Freedom Initiative."

Free on line screening tool for federal benefits for consumers about whether they may qualify for some federal programs, including health insurance programs such as SCHIP, Medicaid, and Medicare. www.GovBenefits.gov

The PDA - Professional Development in Autism

http://depts.washington.edu/pdacent/

Early Intervention Training Center for Infants and Toddlers with Visual Impairments

http://www.fpg.unc.edu/~edin/

CENTe-R: Early Intervention Deaf/Hard of Hearing Resource

http://center.uncg.edu/index.asp

The Center to Inform Personnel Preparation Policy and Practice in Early Intervention and Preschool

http://www.uconnucedd.org/Projects/PersonnelPrep/Default.htm

TRACE: Tracking, Referral and Assessment Center for Excellence http://www.tracecenter.info/

Research and Training Center on Early Childhood Development http://www.researchtopractice.info

The Data Resource Center (DRC) for Child and Adolescent Health http://www.childhealthdata.org/
State-based surveys on the health and health care of children, youth, and families - The National Survey of Children's Health (NSCH) and The National Survey of Children with Special Health Care Needs (NS-CSHCN). Healthy People 2010 - search and compare progress on Healthy People 2010 objectives assessed by the surveys. Easy-to-understand tables and graphs that users can download to (1) stimulate and inform state and community improvement partnerships, (2) educate program leaders, policymakers, and the public, (3) build data literacy, and (4) inform research and grant development.

Grandparents Raising Grandchildren: pdf file with links

Bridges4Kids! - useful information to both parents and professionals regarding parenting concerns, child development, children with special needs, disabilities, and those who are at-risk

Children and Adolescents with Special Health Care Needs: Knowledge Path (good links)

http://www.familycenteredcare.org Institute for Family-Centered Care

http://cshcnleaders.ichp.ufl.edu/ This is a website of CSHN programs around the country, useful for families who are moving, or if you want to find contacts from other states (etc.) Directory of State Title V CSHCN Programs: Eligibility Criteria and Scope of Services (Link to 2000 Edition)

For early intervention programs nationwide: www.nectac.org; get the contact info from each state for part C

Mitochondrial Disease Action Committee http://www.mitoaction.org/

National Survey of Children with Special Needs www.cshcndata.org

In 2001, the Centers for Disease Control did the first-ever, complete survey in the US to accurately indentify families of CSHN and their issues. Now families, advocates and family support organizations can have access to much of the information in a family friendly format. In addition to much of the data (including progress made on the 2010 goals), this website has online workshops.

National Vaccine Information Center - www.nvic.org

Estate Planning - developed by The Maryland Developmental Disabilities Council; download the pdf document.

http://parentsmedguide.org/ practical advice to parents of children and adolescents struggling with depression

Special Needs Trusts and Estate Planning Various links

Sibshops http://www.thearc.org/siblingsupport/sibshops-about

or seattlechildrensorg

The Special Ed Advocate is a free online newsletter about special education legal and advocacy issues, cases, and tactics and strategies. Subscribers receive "alerts" about new cases, events, and special offers on Wrightslaw books.

Spanish-language Web site that helps consumers track down reliable health information quickly and easily on the Internet. Available at www.healthfinder.gov/espanol, the new site creates an easy-to-use Spanish-language consumer resource modeled after the award-winning healthfinder(r) site.

SPIRAL: "Selected Patient Information Resources in Asian Languages," http://spiral.tufts.edu, health information in Chinese, Hmong, Khmer, Korean, Laotian, Thai and Vietnamese. For both physicians & patients.

Link to Misunderstood Minds PBS documentary on learning differences and disabilities with stories and information and resources for parents. http://www.pbs.org/wgbh/misunderstoodminds/

http://www.onestoptoolkit.org/ One-Stop Toolkit for Serving People with Disabilities

Resource for Rare Diagnosis click for info on this resource - which is only available through phone or email.

www.SATH.org is a resource for people with disabilities- info on traveling through airports and autism, traveling with a mobility impairment, how to travel with a speech, sight or hearing impairment, etc.

Transition: <>transition materials and resources, easy access to the print, video and web resources eveloped through the Health Care Transition Initiative.

http://hctransitions.ichp.ufl.edu/hct-promo/

Research and Training Center on Service Coordination

http://www.uconnucedd.org/Projects/RTC/Default.htm

Center on Outcomes for Infants, Toddlers, and Preschoolers with Disabilities

http://www.fpg.unc.edu/~eco/index.cfm

National Early Childhood Transition Center

http://www.ihdi.uky.edu/nectc/ts_AboutCIs.asp

Center for Evidenced-Based Practice: Young Children with Challenging Behavior

http://challengingbehavior.fmhi.usf.edu/index.html

Virtual Pediatric Hospital http://www.virtualpediatrichospital.org/ includes textbooks for Patients: Common Questions and Teen Common Questions and also various textbooks for Providers

New York Parent to Parent website: www.parenttoparentnys.org

New Hampshire Parent to Parent website: www.p2pnh.org

Vermont Links

Vermont Parent Information Center www.vtpic.com
Partners In Adventure camps for young people with and without disabilities. New website: www.partnersinadventure.org

Vermont Protection and Advocacy, Inc. Links: http://www.vtpa.org/relatedlinks.htm

The Vermont "Yellow Pages" for Kids with Disabilities http://www.fetaweb.com/help/vt.htm

The VAMH 2005 Resource Guide, one of the most comprehensive resource guides in Vermont for developmental and mental health services, is available on line at http://www.vamh.org/resguide.html

www.vtsilc.org Statewide Independent Living Council events and meetings you can access the list of statewide "speak-outs"

VT-ILEHP http://www.uvm.edu/~vtilehp

Vermont Family Infant and Toddler Project information: http://www.dcf.state.vt.us/cdd/programs/prevention/fitp/index.html

Special Olympics Vermont - www.vtso.org/

Sudden Infant Mourning Outreach Network of Northern New England: http://www.simonproject.org/

Madisfund Helpful to families having children with hydrocephalus and/or spina- bifida. Debbie is one of our Supporting Parents

Brain Injury Association of Vermont http://www.biavt.org

Kids Are Priority One Campaign - http://www.vtkap1.org

Excellent Vermont Links from Family Voices: http://www.familyvoices.org/st/VT.htm

http://library.uvm.edu/dana/vthealth The Community Health Information Network created by the Vermont Cooperative Consumer Health Information Project provides access to the National Library of Medicine (NLM), "the nation's most reliable and credible source of current and accurate databases of diseases and medical conditions, as well as links to information about Vermont hospitals and health care provider databses."

Department of Public Safety - Criminal Background Check www.dps.state.vt.us
This resource can be used by families, for $10, as a way to conduct a background check on an applicant that has a conditional offer of hire.

The Disability Law Project of Vermont Legal Aid wants to help you get Medicaid funding for case management services for children with significant disabilities. click for their flyer

CSHN has a website! [has useful links] http://www.state.vt.us/health/hi/cshn/cshn.htm

Children's Mental Health Training Calendars http://healthvermont.gov/adap/training/training_list.aspx

Autism Society of Vermont www.autism-info.org

Autism Support Daily is a free, online support group open to parents, families and friends of those with autism. To join this free, online support group, send an email to: AutismSupportDaily-Subscribe@yahoogroups.com or go to http://health.groups.yahoo.com/group/AutismSupportDaily/

<>Website for Orleans County: http://orleanscountycitizenadvocacy.org/

Family Center of Washington County http://www.fcwcvt.org

Vermont Food Allergy Organization website: www.vermont foodallergyorg.org

Vermont 2-1-1 information line and website- confidential information or referral to a variety of services. Vermont 2-1-1 can be reached by dialing “2-1-1” from anywhere in Vermont, or by visiting www.vermont211.org. The helpline staff is available Monday through Friday from 8:30am to 4:30pm. After-hours callers may leave a message on the voicemail system and calls will be returned the next business day.